One of the specialists was a pediatric neurologist. When Evan was in the hospital, he had to endure (among other things) a CT-scan, an MRI, and a 48-hour EEG (30 electrodes glued to his head for two days). They found nothing wrong. So, just to make sure things were okay, Evan had a follow-up appointment with him at the beginning of June. The doctor took one look at him — sitting, playing, being a normal kid — and said there is absolutely nothing to worry about, he’s dead on developmentally for his age, and we never have to see him again. YAY!
Another specialist, a pediatric gastroenterologist, was a bit of a different story. During Evan’s hospital say, he just happened to get some blood work done because he had high bilirubin (jaundice) levels when he was born. So, they repeated that test at the hospital and found they had gone down substantially, but were still elevated. This doctor proceeded to explain to us that high bilirubin levels could cause staining of the brain which could lead to developmental issues, etc., etc.. Needless to say, we were freaked out. Good thing we both have good heads on our shoulders, because we asked him if that was the leading cause of elevated levels. It turns out that, nope, that’s not the case — it’s more likely due to breast milk jaundice and will go away on its own in a month or two.
Sigh. Gotta love doctors sometimes.
Anyway, we ended up having to take Evan to this doctor every month (sometimes twice a month) since then. His jaundice levels did go back to normal after a couple of months, as expected, BUT his liver enzymes were ever so slightly elevated. Last time, in April, they did some blood work to test for common liver problems (Hepatitis, for example), and all came back negative, but his enzymes were still out of the normal range.
Today Evan had another appointment. Of course, the doctor started talking about doing genetic testing, liver biopsies (which have a known mortality rate in children), and other things if Evan’s levels weren’t normalized this time. Part of me freaked out, but after talking to DH about how this guy tends to jump to the scariest conclusions, we decided to see what the results were before going off the deep end.
And, as you may have guessed from the title of this post, all is well!
So, FINALLY, we can forget about the whole ordeal back in November and know that our little man has a completely clean bill of health! YAY!